I got a text today from Aunt Cathy. Will has not gotten better and she was excited because he had an appointment at Primary Children's Hospital in Salt Lake scheduled in February. She just found out that they moved the appointment up to next week! While there he is going to be tested for POTS (Partial Orthostatic Tachycardia Syndrome). It has similar symptoms to mono and often develops with chronic fatigue after mono. This is the same thing that Rachel has had to deal with. It is sad to think about our Will and Rachel having to deal with this but sometimes knowing is better than wondering. I'll keep all of you posted as we find out more. On a happy note he had a visit from his fellow scouts and they brought him some Christmas joy! I love kind people!
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This is outside of Will's bedroom
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I got a text today from Aunt Cathy. Will has not gotten better and she was excited because he had an appointment at Primary Children's Hospital in Salt Lake scheduled in February. She just found out that they moved the appointment up to next week! While there he is going to be tested for POTS (Partial Orthostatic Tachycardia Syndrome). It has similar symptoms to mono and often develops with chronic fatigue after mono. This is the same thing that Rachel has had to deal with. It is sad to think about our Will and Rachel having to deal with this but sometimes knowing is better than wondering. I'll keep all of you posted as we find out more. On a happy note he had a visit from his fellow scouts and they brought him some Christmas joy! I love kind people!
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